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top skip to primary navigation skip to content european patients' academy da | de | en | es | fr | it | nl | pl | ru text size contrast accessibility help share: share tweet share email home what is eupati? eupati 2012-2017 executive summary list of contributors supporters of eupati reliable information eupati ethical framework eupati code of conduct creative commons contact eupati resources what is the toolbox? eupati course eupati training course cohort 3 download the course eupati guidances guidance for patient involvement in industry-led medicines r&d webinar: guidance on patient involvement on industry-led r&d guidance for patient involvement in hta guidance for patient involvement in regulatory processes guidance for patient involvement in ethical review of clinical trials eupati publications eupati media downloads eupati webinars webinar: guidance on patient involvement in ethical review of clinical trials webinar: guidance on patient involvement on industry-led r&d webinar: informed consent for vulnerable populations webinar: early collaboration – a recipe for solutions: drug development and treatment strategies may go hand in hand. webinar: strengthening patient involvement in health technology assessment (hta) webinar: enabling meaningful patient contribution to ethical review? webinar: creating trainings with the eupati toolbox webinar: revision of cioms ethical guidelines for biomedical research. eupati workshops 2017 workshop: all aboard to a better health future 2016 workshop: the interaction of patients, regulators and industry. 2015 workshop: eupati taking off in your country 2014 workshop: reaching a public audience on medicines development 2014 workshop: meaningful patient involvement in industry-led medicines r&d 2013 workshop: a vision for 2020 2012 workshop: eupati’s strategic approach eupati in your country glossary blog menu what is eupati? – eupati 2012-2017 executive summary – list of contributors – supporters of eupati – reliable information – eupati ethical framework – eupati code of conduct – creative commons – contact eupati resources – what is the toolbox? – eupati course – – eupati training course – – cohort 3 – – download the course – eupati guidances – – guidance for patient involvement in industry-led medicines r&d – – – webinar: guidance on patient involvement on industry-led r&d – – guidance for patient involvement in hta – – guidance for patient involvement in regulatory processes – – guidance for patient involvement in ethical review of clinical trials – eupati publications – eupati media downloads – eupati webinars – – webinar: guidance on patient involvement in ethical review of clinical trials – – webinar: guidance on patient involvement on industry-led r&d – – webinar: informed consent for vulnerable populations – – webinar: early collaboration – a recipe for solutions: drug development and treatment strategies may go hand in hand. – – webinar: strengthening patient involvement in health technology assessment (hta) – – webinar: enabling meaningful patient contribution to ethical review? – – webinar: creating trainings with the eupati toolbox – – webinar: revision of cioms ethical guidelines for biomedical research. – eupati workshops – – 2017 workshop: all aboard to a better health future – – 2016 workshop: the interaction of patients, regulators and industry. – – 2015 workshop: eupati taking off in your country – – 2014 workshop: reaching a public audience on medicines development – – 2014 workshop: meaningful patient involvement in industry-led medicines r&d – – 2013 workshop: a vision for 2020 – – 2012 workshop: eupati’s strategic approach eupati in your country glossary blog patient education! the a to z of medicines development search the toolbox by keyword browse the toolbox by category search the toolbox by keyword search text: browse the toolbox by category basics of medicine development general description of the basic concepts and processes of r&d; in medicines. benefit and risk assessment risks and benefits of medicines, and the elaborate system of pharmacovigilance. clinical development and trials introduction to research methods and the conceptual description of trial phases. drug discovery from the discovery of molecules to the explanation of how diseases affect humans. health technology assessment explanation of hta methods and processes, and patient involvement mechanisms in hta. non-clinical studies medicines r&d involves more than clinical trials: translational medicine explained. personalised medicine benefits and challenges in developing, delivering medicines tailored to individuals. pharmaceutical development explanation of the various methodologies of how medicines are and can be developed. pharmacoepidemiology exploration of various epidemiological aspects relevant for medicine development. regulatory affairs regulatory systems for medicines from ema to prescription and off-label use. safety of medicines concise, comprehensive description of the complex mechanisms to keep medicines safe. types of medicines explanation of traditional and innovative medicine types and perspectives of use. how well have we been doing? from time to time we look at our performance to understand the impact of eupati. this latest survey assessed the change in roles of the eupati fellows who graduated from the eupati expert training course. the trends that somewhat fewer patient advocates work as volunteers and more as paid staff, while the number of patient experts advising pharmaceutical companies has more than doubled, speak of professionalisation. the increase in the number of speaking assignments suggests that the fellows' expertise is increasingly acknowledged. regulators and payers are also relying on advice from fellows more than before. the number of inactive patient organisations members has dropped as eupati fellows become more and more integrated into the work of their original organisations. in the survey's narrative part, fellows reported that “eupati is nowadays well recognised as one the best platforms that has stimulated patient involvement across europe“ and “this program needs to be provided long-term. it is absolutely necessary to make sure that we have knowledgeable patients representatives for all medical conditions.” learn more about eupati and its work and get in touch with us on [email protected] . eupati course watch your way to knowledge eupati has developed a massive video library over the last years. webinars, interviews, portraits, guidance - you can find a wide variety of materials that facilitate your work in patient education and advocacy. increasingly, we also feature webinars in other languages than english, and we happily partner up with patient organisations to develop co-branded webinars. these are based on eupati knowledge and contents, or include eupati speakers, but they focus on the issues and questions of a particular patient community. if you are interested in our webinar and video content development activity, contact us on [email protected] . eupati webinars keep in touch and we'll send you updates by email please enter a valid email address. subscribe! something went wrong. please check your entries and try again. eupati in your country eupati is a network of european national platforms. click on your country to find out more and to learn how you can get involved. austria denmark france germany greece ireland finland portugal italy luxembourg malta norway poland romania slovakia spain switzerland united kingdom belgium blogging with eupati paradigm launched with eupati input the word paradigm has taken on a whole new meaning in the eupati community! the acronym stands for “patients active in research and dialogues for an improved generation of medicines”. the aim of the paradigm project is to advance meaningful patient engagement in the life cycle of medicines for better health outcomes. the 1st open patient engagement forum, co-

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